IEPs and School Advocacy
Today I’d like to talk about something
that makes a lot of parents sweat a little:
IEPs and school advocacy.
(OMG even I heard the loud sighs
all the way from over here.)
Ok, yes - I get it.
IEP meetings can sometimes feel
like everyone in the room
already seems to know
what they’re talking about… except you.
Which is absolutely wild,
because it’s YOU
who holds most of the cards
as the parent.
And it’s your advocacy
that will keep your child supported.
Now, full disclosure:
My family had a mostly positive
IEP experience with my youngest
(who has ADHD).
But trust me -
I know that’s not everyone’s reality.
Some parents fight tooth and nail
to try and get what their kids need.
Some have their concerns
flat out dismissed.
Some walk into meetings
feeling empowered
and walk out feeling exhausted.
It’s like having to run a marathon
you didn’t train for
and then no one is waiting for you
at the finish line.
Unfortunately, all of that
is NOT uncommon
and is frustrating to me
as a parent of a kid
that has a learning disability.
So let’s start with the basics,
and then we’ll talk about what happens
when being queer
and having an IEP intersect.
Because those layers matter.
Ok so what, exactly, IS an IEP?
An IEP,
or Individualized Education Program,
is a legal plan that exists
for one reason and one reason only:
To help your child access learning
in the way their brain works best.
Not the way the system prefers.
It’s not there to “fix” your kid.
Or label your kid.
And it’s definitely not there
because your child is “too much.”
That narrative stops here.
Not all nervous systems
learn the same,
and schools are required
to meet kids where they are.
That’s not an opinion.
It’s the law.
And here’s the biggest truth
about advocacy:
You’re not asking for
special treatment.
You’re asking for equal access.
Those are not the same thing.
Which means an IEP
isn’t about advantage,
it’s about fairness.
It’s saying:
“My child deserves to
participate without burning out.”
“My child deserves support
instead of punishment.”
“My child deserves to
learn safely.”
And all of those are
reasonable expectations.
Now, when kids are queer
AND neurodivergent?
School safety matters even MORE.
Because too many
LGBTQ kids experience:
bullying,
subtle exclusion,
and/or emotional shutdowns
that get misunderstood as
behavior problems
because of social bias,
not because of their
neurodivergence.
That misrepresentation
can cause real harm.
An IEP can be part of
how we protect them.
We can give them
quiet spaces,
flexible testing,
movement breaks,
and sensory support.
These aren’t “extras.”
They’re necessary access tools.
And for parents,
let me say this clearly:
You don’t have to be an expert
to be an advocate.
You do not need
perfect vocabulary.
You do not have to understand
every form or acronym.
You don’t need to show up
with a law degree and a binder.
You only need to know one thing:
Your kid.
THAT’S your expertise.
And no one in that room
knows them better than you.
Now, when we talk about
IEP advocacy here at
Rainbow Roots,
we mean:
Learning what your child
is legally entitled to.
Practicing how to speak up
calmly and clearly.
Bringing curiosity instead of fear
into school conversations.
Fear shuts people down.
Curiosity keeps doors open.
And remember this:
You are not “being difficult”
for protecting your child.
You’re being a parent
who’s ADVOCATING
for their child.
There’s a difference, and that matters.
Because advocacy keeps kids safe.
It keeps them safe at school,
safe in learning,
and safe inside systems
that were not designed
for every brain or every identity.
Systems can change.
Kids shouldn’t have to break first.
And if this world of IEPs
still feels overwhelming?
You’re not behind.
You’re learning.
There are plenty of
IEP resources online
that can help further coach you
in your advocacy
at both school
and in the doctor’s office.
That’s all for now.
And don’t forget to take good care of yourself today.